Update on me

I hardly talk about my condition because I don't want to bore people. And sometimes I wonder if people ask how I feel because they really care or are they just being kind?? Usually I just say that I am good, which for the most part I have been. But I still hurt and wish that I had more answers than I do.

We aren't sure how long this auto immune disease will last. Vasculitis is a blood disorder that causes inflammation in your blood vessels. In some cases arthritic symptoms are associated which is what we can't really seem to control. We are managing them but I'm on a lot of medications. I have never been one to take meds unless I have to. Now my morning routine consists of 9 pills and once a week I have an injection medication and once a week I take another pill. Lots of meds when you are only 31 years old.

So I'm tapering down again on my steroids and am starting to feel it. My wrists and arms have been sore lately (i most notice it when I am doing stuff with the boys, lifting Wyatt or changing diapers, strapping the boys into their car seats, etc.)

When I was diagnosed I was told since there was no known cause that it would likely subside in a years time.....well I've been at this for a year and a half and things aren't getting any better....which likely means that from now on we will manage the symptoms while still testing and researching if there is anything else that could be causing this.

The nephrology team wants to do a biopsy as I have continually had small amounts of blood or protein in my urine. Thankfully at my last visit there wasn't anything so they were not forceful but still mentioned it.

So all in all that's the latest on me.....I have another appointment right before Thanksgiving and really am not expecting to learn anything different.

I just wish that I would wake up and be completely restored like I was a year and a half ago......God can do that I know....but I am still thankful for my many blessings so try not to complain about it too much! After all there are far worse things that could happen and for that I am grateful!